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Very well explained - professionally made video!

Hello doc u have minimal pulmonary fibrosis, I’m 32 years old. What medical i take? How many months to take of medicine? I have to chance to healed my minimal pulmonary fibrosis or not? Thank you

Hello Whats the Current update of the Pt in Video

39 ans je suis en diagnostique pour Fibrose pulmonaire, MPOC, emphysème et HTP Merci pour la video 😊

Any solution to this pf from SARCODOIS

This was so informative. Thank yo so much

I have question Can idiopathic pulmonary fibrosis cause damaged both lungs yes or no

Thank you, you explained that very well and made it simple to understand. I would love to be able to do some exercise. walking etc but I also had a broken hip, DDD, Osteoarthritis, Osteoarthritis, Aortic Stenosis and the bones in my spine are so thin I've been told by my doctor could break at any moment. Could you please advise? Many thanks. I also was hospitalized in 2021 critically ill with Covid for a few weeks and I ended up with Pulmonary Fibrosis. I have always been active i,e, teaching dance etc and now I am mostly on the bed,

I had a dr perform a bronchoscopy in August 2023 and he was unable to get a tissue sample because the lymph node was a bit on the hard side and the needle kept bouncing off of the node. Then in October 2023 I underwent a day surgery where I had a lymph node at the base of the neck and sub clavicle region was removed for sampling. The test results came back a month later and I was told the results were non necrotizing granuloma/sarcoidosis.. I was asymptomatic until 2017 when I passed out when riding a bike and then given a hint in January 2019 that I would require avr. Makes me wonder if I had the granuloma/sarcoidosis before the heart surgery or the complications from the surgery such as having pneumonia may have triggered the granuloma/sarcoidosis.. Watching your video gives me thought and questions to ask when I see the specialist hopefully next month to learn what the next step is in treatment.

I lost my dad to IPF a month back. It has been the toughest part of my life. I used to watch these videos

I hope you’re still doing good.

I got diagnose with ILD NSIP this July , initially I was anxious for couple of days , because my brother passed away at the age 31 in October 2019, he was diagnosed with this disease in May 2018, but I m being positive, I m immune suppressant MMF S 1080 Mg and omnacortil 20 mg, I do breathing exercise, my oxygen does goes down while I m active between 88 to 92 and in resting mode it is 98, let’s see how long will I live, but I have decided I will live happily.

Great resources - nice to see so much more information than when my Dad was diagnosed 15 years ago! ❤

Great walk today - thank you CPFF for keeping Robert's story in our hearts and minds and continuing his legacy for the benefit of those whose lives have been touched by Pulmonary Fibrosis. He was a great inspiration to my Dad who also passed in 2019. I know they are cheering us on today! ❤‍🩹

I am not sure if you're a Christian and nor do I intend to force this upon you. But I am a Christian and I feel obliged to share with you the option of spiritual healing. The link is a video of a healing prayer. It's your choice to follow the link to follow the prayer to seek divine healing from God. ruclips.net/video/t6Vz-raddi4/видео.html God bless.

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I have question does pulmonary fibrosis affect and damage both lungs

Thank you for publishing this video - my wife has PPFE, which is slightly different and the rarest of the lung diseases - she has the best consultant and is regularly checked - has a really positive exercise regime, and chest infections are common. Our more local consultant who she see's occasionally - just in case we need to drop into the local hospital - when first confronted with her condition, apologised and looked sad - clearly she knows what is to come. Thankfully, and I hope this arrives as a positive message for many with these rare and unexplainable conditions - she first got ill in 2016, took until mid 2018 to diagnose - and is still considered to be mild. Although her gas transfer capacity has dropped to around 80% over the last few years. A sign of things to come I suspect. I encourage her to exercise everyday - she eats really healthy, weighs in every day too, and we walk together for four miles - we have good days, and we have bad days - in the darkest part of winter she misses the occasional walk owing to chest infections or being off colour. I suspect while she is 52 now, she will not reach retirement, and her occasional breathlessness is a worry when it occurs. There is less known about PPFE, than other forms of ILD.

😢my husband has it.

My oxygen is 50% low and I'm using 4 Leaders of oxygen while walking

If doctor"s know that you have pulmonary fibrosis, why won't they start us on medication to slow the progression early instead of the wait and see what happens approach? Hey doctor! You have time to wait and see to make your final diagnosis once the damage past the point that the meds would have bought us more time. You're not the one who is dying!!! We are! And guess what... You have no idea what it's like for us mentally and emotionally, let alone physically! Oh, you say you know because you see us once in a while, NO YOU DON'T! Your whole life is not going to be cut short.There is no way you can know until it's you!

Je crois que je suis le premier au monde à savoir travailler la fibrose respiratoire qui est dans le muscle profond pectoral et diaphragmatique, et pas ou très peu dans les poumons !

Am so sorry to hear that

Excellent video.

I'm so much grateful to Dr Ehimare herbal medications treatment on RUclips channel who cured my fibrosis with the use of his herbal medicine treatment

Excellent presentation, thank you.

I don’t know Paul you’re walking around I am barely get off the couch oxygen and all the stupid medications took a year to diagnose me I can I get off the couch maybe three times a day it’s hell I can’t breeze my hair is falling out no medicine is working

Thx alot It was useful ♥️♥️

I was crying hearing that i was diagnose with PF...pls someone help me.figure it out.

It's true 🙏😔

Thank you very much for the useful information

Love this video :-D!!! Promote your social media with Promo-SM.

I just feel scared at the moment I don't know if I have got it or not .got one more test . They lungs are clear but I have scarring. So perhaps I have something controllable fingers crossed.

R.I.P. John

My mom is suffering from ipf from last 20 years😢

I am so glad I found this video.

🙏♥️

Very informative

I also have Fibrosis and COPD they gave me 2 to 5 years to live went to testing for a lung then I stopped God will call me when he is ready. Just want to see my children out of school and a good job on their own Bless the ones who are sick

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Merci infiniment.

My dad is 73. He is battling IPF as I am writing this. Please pray for him.

I was cried watching this video, so true when it hard to explain about our health condition to our fmly...n others. Like nobody can understand u. 😢

This is hard to watch 😢. Things are better now I think. My husband just started ofev

Thank you. My husband just got palliative care on board last week. So far. They have been very quick and helpful .

I’m so scared I’ve got this 😢

Please help my daughter with ILD

👍

All thanks to Dr Madida on RUclips for accepting to help me the first place, he indeed cured me of my IPF(Idiopathic pulmonary fibrosis) with his herbal medicine.

No updates 😞